- About EMBARC
- Patient Resource
- Registry Documents
- EMBARC Registry
The EMBARC (European Multicentre Bronchiectasis Audit and Research Collaboration) network was established in 2012 to facilitate multidisciplinary collaborative research in non-CF bronchiectasis. The aims of the EMBARC group are
The EMBARC network is an open collaboration. Anyone with an interest in bronchiectasis can join and take part in Network activities. For more information about joining the network please visit our membership information.
Bronchiectasis has historically been an under-research and under-resourced "orphan disease". It is now recognised that bronchiectasis is placing an increasing burden on healthcare systems around the world and there is an urgent need for better treatments, better clinical care and for clinical and translational research in this condition.
EMBARC is the first truly international bronchiectasis network seeking to bring together investigators from around the world. Central to the project is the creation of a multicentre registry of patients with non-CF bronchiectasis. This study will enable a group of experienced researchers across Europe to answer fundamental questions in the epidemiology, aetiology, microbiology, pathophysiology, clinical management and prognosis of bronchiectasis.